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Pain Clinic

Started by looneylane, November 10, 2021, 12:54:50 AM

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0 Members and 23 Guests are viewing this topic.

looneylane

So I am happy to say I am finally going to be seen by a pain specialist at a pain clinic and extremely nervous as well.  What is your experience with pain clinics? are they there to help or just to try and take away pain management meds.

foxgrove

Praise the Lord!!  That's great.  I had two experiences with pain clinics.  The first one put me in physiotherapy and sent me away with tramadol.  The second put me on oxycodone and set me up with a tens machine.  Both were somewhat helpful, neither was satisfied with the amount of change that their therapies had on me and summarily dropped me.  Hope they are able to improve your pain, brother. :bighug:
Where God leads, His hand always provides
...so keep Calm and code on....

Foxgrove

Robby

I have had several different nurse practitioners over the years. Most were within one pain clinic, I was there for just a few months shy of 20 years, so I outlasted many. Typically around here, you have one MD overseeing two to four NP's. I have had the spectrum from one that after I think it was 12 years of me being treated, on her very first day seeing me, she walked in and without any conversation she told me every provider I had seen until her was wrong. That meant two neurosurgeons, 4 or 5 Np's, 3 MD pain specialist, a sports medicine dr, and God only knows whatever else I had seen that all agreed with each other were all wrong, but her a little Np knew more than all of them. That day she refused to write my  scrips, until I had a test for small fiber nephropathy, because she had never seen a real case of fibro, instead everyone diagnosed actually had SFN. That took 6 weeks, plus my next appointment with the pain cinic was scheduled for 3 months from the first time I saw her. The funny thing was when I went back in the next time, I was looking forward to rubbing it in her face that she was wrong, because she was a real Samantha Stevens, but with a capitol B. But she was no longer there, she was let go within a week of me seeing her, there were too many complaints about her attitude and talking ugly to patients, Don't make a pain patient mad, we are already in a bad mood, and we have nothing to lose.

On the other end I had one that I had to tell her to calm down. I had to make her cut back on my meds, she had me on ultram, fentanyole patch, lyrica, and something else, pretty high doses at that. I was feeling real good. She just wanted to make sure my pain level was low, and under control, it wasn't incompetence, or whatever if I complained about my pain level, she gave me more. The clinic I'm at now (for the last 2 or 3 months), I have to drive an hour and a half every two weeks, for right now, it will get farther and farther apart, but I have to go to the main office and have a nerve block done. At the original clinic it was optional, if it worked good enough you could choose to do it. This clinic you have to do it. They kind of lie to you and say that if you don't get good enough relief from the injection, then your insurance will not pay for pain treatment of any kind ever again. The fact they are my last choice for a  pain clinic, I'll do what I have to do.
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I will put you in the trunk, and help people look for you, DON'T TEST ME.

ronr

Robby gave a good description of pain clinics in the US.

They want to just give you the pain MEds you are on when you start with them.  Any increase needs Mri or some documentation to substantiate.  I have only seen the Dr twice in about 15yrs of going there.  Rest of the time it is NP and the faces change there from time to time.

They like to push injection cuz they can make big money without much effort.
Times are tough when "Happy Hour" is your nap.
My mind not only wanders, sometimes it leaves completely!

Barberian

Personally, I've never been to a "Pain Clinic". I've been going to either a navy doc or the VA. since '86. Fibro has been a problem since my late teens but it wasn't really bad until the early 2000s. 2006 and I was barfing because the pain got so bad a couple of times, only happened once after '06, a year or two ago, but I am often still in considerable pain most of the time. But enough about me.

My wife has had several pain clinics she has had to go to over the years. Most only lasted a few years before closing down. My wife has had a hand in at least one of them closing. they were double billing the insurance company and suffered the consequences. ALWAYS CHECK YOUR MEDICAL BILLS OVER FRONT TO BACK ALONG WITH THE RECEIPT FROM THE DOCTOR's office. My wife had a doc this last year cancel a few of her most needed medications because he was from India or some backwater part of the country, and didn't believe she needed them, he wanted her on psychiatric meds for depression and such. She is now between docs because of it and can't get into her new doc until Dec. I wish he could experience what real CHRONIC pain is. I know that is a bad thing to wish, but IMHO there should be a way to cause chronic pain (non-permanent) for all pain docs to live with before they get their certs as a "pain doc"

California is probably one of the worst states for pain meds/docs. Ca over regulates EVERYTHING and has to be on the bleeding edge of all the laws/regulations in the country.

Slides off the soapbox and tries to figure out if the above is understandable.


Robby

Quote from: Barberian on November 11, 2021, 03:13:18 AM
I wish he could experience what real CHRONIC pain is. I know that is a bad thing to wish, but IMHO there should be a way to cause chronic pain (non-permanent) for all pain docs to live with before they get their certs as a "pain doc"

What I have always wanted to patent, and get made,  is a machine, that is portable, with two sets of leads, or two helmets whatever. This is going to be like some of the old black and white scary movies or cartoons, where they tried to swap personalities in bodies. But you would hook the patient to one side, and the doctor to the other side, when the machine is turned on, you would sit there for 10 to 15 minutes, this machine would pull from a certain part of your memory and from how you feel at that moment, and the doc will feel the exact same pain at the exact same level and location. So they can feel exactly what you  feel.

Barberian I had been telling my pain clinic just how bad my pain was, this was less than a year after starting there, and probably within the first six months. I told them how the pain got bad enough I would vomit. Then at times it got worse than that and I would pass out. So I went in for an injection, the doc went to feel of my spine to find the right spot to put the injection. Problem is he pressed and hit the right spot immediately, and he pressed too hard, when he did my head come off the table, I sort of screamed, and passed out for somewhere around 30 to 45 seconds. After I came too, and got back to "normal" he said, "looking at your chart, I knew you were in pain, but I did not believe it was as bad as  you said it was. I do now, and I promise I will get you some relief." That was the best thing that could happen, because he made me a priority, and he did get my pain level down to a manageable level.

One thing I forgot to mention about pain clinics, every one I've talked to have one of two rules, #1, they just don't treat fibro, because there is no test that can prove the pain exist. It doesn't matter if they believe it's real or not, there is no physical proof. #2 They do not believe fibro is real. Which has never bothered me that much because when they treated me for the pain that can be proven, it helps the fibro, I just have to remember to keep my complaints and such directed toward certain things, and not discuss the fibro. I don't like it, I think it's wrong, but as long as I can play the game, and work through the system and sneak it in the back door, I'm happy.
/>----------
I will put you in the trunk, and help people look for you, DON'T TEST ME.

ronr

Doesn't matter the cause, it's still pain.

Some new test out that is supposed to prove fibro.  I looked at it a while back & wasn't terribly impressed.  They said insurance would pay for it though.  Will have to listen for next ad.  Seems like it was Univ of Ill.
Times are tough when "Happy Hour" is your nap.
My mind not only wanders, sometimes it leaves completely!

Barberian



Long-winded answer(?). At no point in my post am I bragging or putting anyone down, just doing a poor job of explaining myself. I'm having a hard time concentrating.

Quote from: ronr on November 11, 2021, 07:21:57 PM
Doesn't matter the cause, it's still pain.

Some new test out that is supposed to prove fibro. 

This just kind of scares me(personally and for others as well).

I believe there are many causes and symptoms of Fibro. It has ended up as kind of a catch-all when science can't explain away the pain There may be a specific cause for most of the cases, but it is beyond science/medicine to figure out that "It" is. What if a severe fibro sufferer doesn't meet the "magic" criteria for the tests? (I don't have the pressure points that I know of) It would suck to be them if insurance and doctors set care standards for them on the test results and they weren't in the bell curve.

Over the years I've read many accounts of fibro sufferers, many are quite different than the others (bell curve). Does that mean they aren't sufferers? Not being antagonistic, just asking a question the test makers are probably not considering or caring about.

Personally, I believe my fibro isn't as bad as many here suffer from. I feel bad when I complain about having a "bad day" when I know it might be considered a "Good day" for some others here. I do have truly terrible days at times, but not often (a couple of times a year, the rest of the time it just sucks to be me, some days it REALLY sucks to be me). Do I still suffer from Fibro? I and several of my doctors believe I do. Might I slip through the test criteria? Who knows... I've been tempted to say this about my fibro for a while in various forms or another but didn't want to offend anyone. I'm one of the "lucky ones" who's life just sucks because of the pain. I keep laying down from my sitting position on my bed because I can't continue to sit up, but from what I've read from others, that would be considered a "good day".

Like I said at the opening of my post, I'm not bragging or putting anyone down. I'm just weird.


looneylane

Barberian each of us experiences it differently I was diagnosed in 98 and still managed to lead a fairly productive life but then added other things to the mix and now I feel like I could never be that guy again.. Thank you for sharing your journey with us!

foxgrove

Thanks for voicing my biggest concern about the whole testing thing.  If some insurance company is willing to spend the money on the test, they're gonna be big into evaluating the results against your condition.  False negatives included...  The entire thing just freaks me out 'cause there really isn't anything the test will do for us other than give us a sticker that says yup, something else confirmed why I'm screwed.  Know what I mean?
Where God leads, His hand always provides
...so keep Calm and code on....

Foxgrove

ronr

Barberian;  I did meet one guy that the doctors labeled as A-typical Fibro.  He did not meet the required number of points.
Times are tough when "Happy Hour" is your nap.
My mind not only wanders, sometimes it leaves completely!

looneylane

DING DING DING I went to my pain specialist today!! He was an hour and a half late so there was no being comfortable waiting as well they made me provide a urine sample (they never said anything about that when I was booked in so I had already gone) It seems it was worth the wait we will see down the road. He plans on removing the roadblock to pain relief as he believes the best thing for me is to switch back to Tramadol/cet as soon as he can get the paperwork in! it took an hour for him to do all the testing and review he wanted to and then he announced he was actually one of the workers compensation pain specialists (the guys that try to cut you off) He stated if he saw my file come in he would have got me on proper pain management right away....we will see it may take a few months to get the paperwork in order and he thought he may have to bypass my GP as it seems my GP is afraid of me using pain management meds even though it is the only option that I will benefit from.  I will update when I see what happens I don't want to get my hopes up.

ronr

Wishing you luck buddy! 

We are all way too familiar with the buttheads that would just as soon see us barely able to function from pain rather than stand up to the gov whack jobs for their patients as in 'do no harm.'. I'm sure there are abusers everywhere but not all patients are abusers.

Times are tough when "Happy Hour" is your nap.
My mind not only wanders, sometimes it leaves completely!

looneylane

Thats the thing isnt it they are afraid on two fronts or just plain care enough to help us! When he found out I was the head of Search and Rescue as well as the Deputy Chief for fire rescue and then had a steep decline in health that lined up with being put on T3s and being cut as far back as possible, with that he at least said he was on my side and he seemed shocked after seeing my file that I had no support medically (Don't get me wrong I actually like my DR as a person and it is impossible to get a GP that will take on an actual patient nowadays here) It is like my GP has just shut down when it comes to my pain.

foxgrove

Well praise God and pass the plate!!  That's fabulous news, brother. :bighug:  Glad this new doc has the sense to avoid your current doc.  They may be great but once they've made up their mind and it's set, things swiftly go downhill.  So glad that the relief is coming. 
Where God leads, His hand always provides
...so keep Calm and code on....

Foxgrove

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