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Low Dose Naltrexone (LDN)

Started by JamesHell, December 12, 2012, 09:05:14 PM

Previous topic - Next topic

0 Members and 27 Guests are viewing this topic.

JamesHell

Hello.

I'm thinking of trying this next month. Have you heard about it? I saw the graphic in this page and it intrigues me: http://curetogether.com/blog/2011/08/10/patients-say-fibromyalgia-drugs-make-things-worse-rest-is-best/

Here is more info: http://www.lowdosenaltrexone.org/ And a study: http://snapl.stanford.edu/research/ldn.html


I also want to try GHB later... Yes, GHB. :)
15. The son of a king | shall be silent and wise,
And bold in battle as well;
Bravely and gladly | a man shall go,
Till the day of his death is come.

foxgrove

#1
Actually, low dose naltrexone (LDN) has been discussed many times over the years.  Here's some links to those discussions:

Low Dose Naltrexone - http://menwithfibro.com/forum-archive/index.php?topic=2886.0

Developmental Drug Effective in Chronic Pain Relief - http://menwithfibro.com/forum-archive/index.php?topic=6420.0

Low Dose Naltrexone - http://menwithfibro.com/forum-archive/index.php?topic=2887.0

Low Dose Naltrexone - http://menwithfibro.com/forum-archive/index.php?topic=501.0

Options sought in balancing painkillers - http://menwithfibro.com/forum-archive/index.php?topic=4078.0

naltrexone?? - http://menwithfibro.com/community/index.php?topic=1107.0

LDN--Low Dose Naltrexone - http://menwithfibro.com/community/index.php?topic=1815.0

ndtrexone ln small dose helps fibro any one know anything about it - http://menwithfibro.com/community/index.php?topic=3203.0

Drug to treat opioid-dependent patients - http://menwithfibro.com/community/index.php?topic=3403.0

We've also discussed sodium oxybate many times before but I'll let you do the searching on this one.  :biggrin:
Where God leads, His hand always provides
...so keep Calm and code on....

Foxgrove

JamesHell

Thanks, fox. I'll do a search later. Some of those links you posted ask me for a password.
15. The son of a king | shall be silent and wise,
And bold in battle as well;
Bravely and gladly | a man shall go,
Till the day of his death is come.

foxgrove

Hmmm.. I'll check with Ron.  These are links into the archive area so maybe there is a technical issue there.  Should have you right as rain in no time.  :biggrin:
Where God leads, His hand always provides
...so keep Calm and code on....

Foxgrove

WolfSoul

I just asked my doctor about using it. He's a good one, so I trust him. He doesn't like to use it, though if I said I want to try it, he'd probably let me. He did suggest a pain clinic, but I figured all they are going to do is change up my meds and screw me up so, yeah, no thanks.

WolfSoul

ronr

The entire list of links work for me so long as I am logged into the forum.   Is there still a problem with this for anyone else?
Times are tough when "Happy Hour" is your nap.
My mind not only wanders, sometimes it leaves completely!

mloved

ronr - The links to the Forum work but the three links (1,3 and 4) that are in the Archive, wont accept my password.  As in the past, I've experienced the same with the Archive and could not access.
Not my will, but Thy will be done

Imagine - John Lennon

Groundhog Day - the movie

Where the mind goes, the body will follow

Zathras

I tried the first link and the error message that came up was User Name Does Not Exist.

jmanwithfm

JamesHell,

I got excited about GHB about a year ago. My brother-in-law was prescribed it for treatment of narcoleptsy. Since its effect wears off after a couple hours, he had to take it twice each night, first at bedtime and again a few hours later. He said it really improved his ability to stay awake during the day. Although its use is approved for narcolepsy, last I heard is was not approved for FM. Unfortunately, it is very expensive and so not covered by insurance if prescribed for off-label use.

The idea that it deepens sleep allowing greater nightly recovery of the muscles and body is an intriguing one for those of us with FM. If you are able to give it a try, we would sure like to know how it worked.

Good luck.
Jon Miles

ronr

#9
I tried making some changes to the archive forum but it still will not accept a guest into those areas.  It also will not allow you to register SO I just copied the three problem threads and they are posted below in sequence IE: 1,3,4.  If there are more, please let me know so I can copy them until such time as I determine why it will not allow you in.


bmoulton
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Low Dose Naltrexone
« on: July 03, 2006, 08:16:49 PM »
Has anyone tried, or have any opinions about Low Dose Naltrexone http://www.lowdosenaltrexone.org/

A local Neurologist is using it for MS patients, and thinks it may help me.  Wondering if anyone has used it, and what the Good Doctors opinion might be.

Thanks,
Bret
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michael mcnett, md
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Re: Low Dose Naltrexone
« Reply #1 on: July 10, 2006, 11:29:50 AM »
I'm not sure of the specifics of the treatment you're referring to...

There is a new long-acting morphine medication coming on the market that adds microscopic doses of naltrexone - it's supposed to prevent tolerance, withdrawl, and actually improve the potency of the opiate through some complex action at its receptor site.  Though I was told about it almost a year ago at a conference, I haven't heard anything about FDA approval yet.

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bmoulton
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Low Dose Naltrexone
« on: July 03, 2006, 08:18:22 PM »
Anybody tried this?

http://www.lowdosenaltrexone.org/

I've posted this on Dr. McNettes forum also.  A local Neurologist is using this for MS patients and thinks it would work well for me.
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coordinatorman
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Re: Low Dose Naltrexone
« Reply #1 on: October 14, 2006, 08:20:22 AM »
I go to to the doctor next week and am inquiring about this one.  Sounds like it may work for me--(I hope).
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Peter
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Re: Low Dose Naltrexone
« Reply #2 on: October 14, 2006, 08:50:35 AM »
I just did a cursory search on Drug.com  http://www.drugs.com  for Low Dose Naltrexone and just Naltrexone ....

You might want to read that info too ... before approaching or deciding to take the drug.  I guess in regular dosages its used to help drug addicts & alcoholics to "beat the monster".  It eliminates the effects of narcotics & alcohol.   So ... even at a low dose ... if you are on narcotic based pain killers it "might" affect their effectiveness.

BUT ... I admit I did not read the info at the links website extensively.

Personally ... I always consider a manufacturers website promoting a product as the "beginning" of research into the drug.   Definitely NOT the end of research.

That said ... what I HAVE read so far (apart from whats on drugs.com) ... on sites I found on a Google Search ... certainly has me more than a bit intrigued.

If anyone chooses to try Low Dose Naltrexone ... I am sure we would all be interested in hearing your assessments.
Peter
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coordinatorman
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Re: Low Dose Naltrexone
« Reply #3 on: October 14, 2006, 10:16:34 AM »
Peter:

Thanks for that link.  Very useful and informative.  I'll be sure to bookmark that one.

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aj1
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Low Dose Naltrexone
« on: February 26, 2004, 07:21:46 PM »
Has anyone heard of this?  

http://www.lowdosenaltrexone.org/

best wishes
aj
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Skull
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Low Dose Naltrexone
« Reply #1 on: February 27, 2004, 07:56:10 AM »
AJ...NO...and the skeptic in me says that is sounds way to good to be true.

"Bernard Bihari, MD has described beneficial effects of LDN on a variety of diseases:
Cancers: Other Diseases:
Breast Cancer ALS (Lou Gehrig's Disease)
Carcinoid  Alzheimer's Disease
Colon & Rectal Cancer  Behcet's Disease
Glioblastoma  Celiac Disease
Liver Cancer Chronic Fatigue Syndrome
Lung Cancer (Non-Small Cell) Crohn's Disease
Lymphocytic Leukemia  Emphysema (COPD)
Lymphoma (Hodgkin's and Non-Hodgkin's)  Fibromyalgia
Malignant Melanoma  HIV/AIDS
Multiple Myeloma  Irritable Bowel Syndrome
Neuroblastoma  Multiple Sclerosis (MS)
Ovarian Cancer  Parkinson's Disease
Pancreatic Cancer Pemphigoid
Prostate Cancer (untreated) Psoriasis
Renal Cell Carcinoma Rheumatoid Arthritis
Throat Cancer  Sarcoidosis
Uterine Cancer Systemic Lupus (SLE)

Ulcerative Colitis

Wegener's Granulomatosis "

This is way too long a list!

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aj1
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Low Dose Naltrexone
« Reply #2 on: February 27, 2004, 06:03:47 PM »
hey skull know what ya mean but trying to keep an open mind :lol: '
aj
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aj1
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Low Dose Naltrexone
« Reply #3 on: February 27, 2004, 06:40:16 PM »
hey skull know what ya mean but trying to keep an open mind :lol: '
aj
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michael mcnett, md
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Low Dose Naltrexone
« Reply #4 on: February 28, 2004, 09:24:04 AM »
I'm sceptical.  Besides, Naltrexone is a narcotic blocking agent, so if you're on any pain meds, it will keep them from working.  It will also interfere with your body's natural endorphins in any effect they may have in blocking your pain (ie, after exercise).  Not the best thing in fibro.
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aj1
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Low Dose Naltrexone
« Reply #5 on: February 29, 2004, 11:57:45 AM »
Thanks Dr Mc Nett for joing in and being here to help keep us on the right track.  Naltrexone OOOuuu Not good,  well back to the drawing board. Ya know there are so many claims  and or miracle drugs,  the one I was hoping for good results from was milicipen (spelling) was suppose to remove all the side effects but still work,  I see I think its phizor is developing something for fm

  :Group:
I think it was  the lady  physic or is it physchitatic ( spelling) ( dont remember her name ) said they would find a cure this year :Group:

any way yeh I know its a multitutde of thing going wrong :wallbutt:
:curse: :BASH:
bestwishes to all
aj  
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Skull
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Low Dose Naltrexone
« Reply #6 on: March 01, 2004, 11:22:14 AM »
AJ...Pfizer's Pregabalin isn't looking like the wonder drug they were claiming. It is another "Gaba" drug that has been out before and it's clinical trials for Fibro have now been delayed 6 times for a total of 21 monthes and counting!  
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aj1
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Low Dose Naltrexone
« Reply #7 on: March 01, 2004, 05:37:45 PM »
man skull you sure enough knowhow to rain on someones parade
:ponit:

i have been waiting for that one and the millicipen from another company but i saw one guy said he wasnt able to keep taking it to many side effects he got to be in on the trials i guess..

i did see on the thyroid .org site where the use of lithium was a possible candidate for hypothroid
anywo all hope is lost afgain
well back to using pinecones

:crazy:

best wishes
aj
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Skull
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Low Dose Naltrexone
« Reply #8 on: March 01, 2004, 05:48:40 PM »
AJ...I know of one doc who thinks that all Fibro is Thyroid related...I hate him (so does Bob)...he now believes that some of the anti-psychotic drugs may help  controls throid conditions. He is going further off the deep end of his profession. :rant:


:insane:

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poodlemum
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Low Dose Naltrexone
« Reply #9 on: March 01, 2004, 06:03:13 PM »
Just wanted to jump in on this post. If that doctor thinks thyroid is the problem then why arent I cured . I had my whole thyroid out and am on what is supposed to be the perfect dose. If anything I feel worse not better. So thyroid is not the reason. It probably affects the thyroid though. I wonder how many people with thyroid cancer also have fibro. That would make an interesting study.
poodlemum
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Skull
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Low Dose Naltrexone
« Reply #10 on: March 01, 2004, 06:07:31 PM »
:gDate Rose...I have a thing about him on my site. He's a maverick even among his own kind. The fact is that Fibro and Thyroid diseases aren't really linked as far as the best evidence can show and if there is any link at all it is not the Thyroid contributing to Fibro but Fibro contributing to Thryroid problems. It seems a large number of true Fibro patients have glandular troubles...Adrenal and/or Thyroid.
Times are tough when "Happy Hour" is your nap.
My mind not only wanders, sometimes it leaves completely!

foxgrove

Thank you Ron.  Sorry I threw such a doozie at you brother.  I like your solution though.  Simple is almost always the right answer.  :clapping:
Where God leads, His hand always provides
...so keep Calm and code on....

Foxgrove

ronr

Let me know if there are any other problems since things like this don't appear for me.
Times are tough when "Happy Hour" is your nap.
My mind not only wanders, sometimes it leaves completely!

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