10 Common Fibro Signs

[DEL]

I thought this was informative and understandable right up until the last paragraph which seemed to give false hope...

It pisses me off when otherwise good articles go off into "well, the good news is..." kind of bull

Anyhow, please judge for yourself:

http://sheknoweverything.com/the-10-most-common-signs-of-fibromyalgia/

[Lonesome George]

Every article that I read is written by someone that DOES NOT have fibro, but go on to tell everyone what it's like.  This person got quite a few things right, and also quite a few wrong.  How can someone that has never experienced this be an expert on how it feels, how it affects us, and what helps.

Ever doctor seems to think anti-depressents and meds derived from them like the ones approved for fibro are the answer.  The reason? The drug companies make a fortune off these drugs.  They don't make crap off the meds that really work because they are either generic or home grown.

As far as I'm concerned the SSRI approach doesn't do much of anything except make the drug companies rich. It's no wonder people don't take us seriously.  We have a woman's hysterical disease. It's in our minds, we need anti-depressents, we need to exercise more.

I mentioned in another thread what I did on Monday.  Today I wasn't worth anything.  I went to the grocery store with the wife tonight, and after putting everything away after the mentally and physicially exhausting trip of two miles each way I am in a place I haven't been in a long time.  I am in horrible pain, can't focus my mind or my vision, have a very short fuse and grumpy.  In fact the wife had to go to bed to get away from me.  

I want the sob that wrote the article to see what fibro is really like and the physical, emotional, and relationship toll this damned desease, syndrome, or whatever, takes upon those unlucky enough to be afflicted with it go through.  

I usually cope with this very well, but tonight I have about reached my breaking point. My wife has developed a very bad back problem and she is the source of income much to my shame. I keep getting worse which has ruined our long term ideas about our lives.  The damn doctors are to chicken shit to say I'm really disabeled, and everything is falling apart around me because I'm not able to do anything about it, even though according to the doctors they are unable to determine that I am disabled.  I'm about to the end of my rope....

[looneylane]

I am in a research program right now and by modern research standards all these specialists and researchers on fibro ae using bad methodology that is highly flawed. Being outside observers imposing your parameters ( As well as biases) has been shown to bring flawed results. The best research is done in partnership and in collaboration with the research subjects or with multiple researchers from divergent schools of thought.

[old boy]

 



.      Understandable, that only people who don't have the fibromyalgia are the only ones who are writing about it,simply because they can..... We who suffer,don't have it in us... Believe me I know! I've been trying for over ten years! On my good days,I have managed to get a publisher interested, West bow",  Christian publishing  ... But dudes.with the lack of energy and the brain-fog.... It's been almost impossible.  I'm thinking about saving the time,concentration of the outline and just printing the notes as are..... And opening up the story with the explanatory text of.....this is it. It is,as it is.
Then closing down 👇 with the explain of what my notes are about....
.       But that takes work.....the thinking 😔 about don't take the energy... I got the"dragon 🐲" took a year before I even got it out of the package.... Then.. That done.. I've been trying it out...three times in the last three months..! It's just not easy for the fibromyalgia suffers.  I've asked my psychologist Ellen if she would co-author...giving me a push..but she's been washy washy...and I get the feeling that she's going to try publishing on her own with the information she's learning from me.... She's already published a book 📚 on chronic pain...