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It does not matter the name, We all have the same symptoms.
We are THE ORIGINAL
"MenWithFibro"

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#31
General Discussion / Re: Forum movements
Last post by Robby - October 14, 2023, 12:26:56 PM
I've said this recently but I don't think I can lose any more of my brothers from here. I am trying to stay neutral in this as I don't want to be involved in the decision. I will stand up and suport any decision made. I do think Discord would be a good place for us, but I'm like Switzerland.

I agree everyone please leave your comments, please we need everyone's input on this. This is one of those hard decisions that can only be  made with the feelings and comments of everyone. I don't want to lose what we have here, but it's just become more than we can deal with physically, and financially I know the guys in charge must have spent a long time thinking on this, I doubt they bot to this place without a lot of concern for all of us, a lot of emotional pain.

#32
General Discussion / Forum movements
Last post by ronr - October 13, 2023, 06:17:52 PM
We're still having issues with the forum software and had to change $ervers recently which should have been relatively seemless.  Other than a slew of error messages for some.

We are looking for suggestions from anyone and everyone on where to go from here!!!!
We need to keep cost down, like zero or less would be in our price range.
Ease of operation for ALL, especially admins who minds are slipping as bad everyone else's when trying to tend to things.
Privacy is of major concern also because we don't need snake oil salesmen, making rude comments about things they know nothing about, or people farming our data.

Mentioned so far has been:
Facebook
Discord
or just disbanding after all these years.   :an cry bukets:  :an cry bukets:  :an cry bukets:

PLEASE leave some feedback so nobody is left out.  Good, Bad, Ugly, we need comments from YOU the members as to your desired direction !!!!!  There will be changes we have to accept.  Let's make them as few as possible.
#33
Rants & Raves / Re: Roller coaster ride from h...
Last post by ronr - October 13, 2023, 06:02:29 PM
So glad to hear about your GREAT visit with Dad.  That makes it all worthwhile!!!!

Keep us in the loop about your "private" surgery.  Maybe that will put you back on a road of NO DECLINE even it requires weeks of recovery.  It will be worth it for peace of mind above all else.
#34
Rants & Raves / Re: Roller coaster ride from h...
Last post by looneylane - October 12, 2023, 08:24:45 PM
Ok Update! The trip to see my dad in Nova Scotia came to fruition my siblings, wife and  dear friend almost adopted all flew out but Dad ended up in the hospital twice while we were there. We tried to seriously limit how much time to cause him the least stress but with his cancer and age we had to see him while we could and he enjoyed it. It was a complete surprise that all of us flew out to see him he knew my brother was coming but when we all piled he started to cry and said "My KIDS all of my kids!" He is 82 and fought the last fourteen with differing cancers. 
   I had to spend two days in bed at the air bnb so as to not limit the rest of the group but I got some good time in with dad and also siblings. I know you guys kept me in prayer and I am hoping things will ease up soon as I would love to help where I can but first I may have to have surgery on my privates the pressure from the growth has screwed up my walking and ability to go pee in a timely fashion but I am still here! Today is my 58th birthday and I celebrated by going to the fire hall to gather up fire alarms for seniors that can't afford them. The Chief is now on a hunt for more so we can get people covered
#35
OPEN TOPIC / Re: Just had to share with the...
Last post by ronr - October 11, 2023, 07:05:46 PM
 :blue thumbs up:  :blue thumbs up:  :blue thumbs up:
#36
OPEN TOPIC / Re: Just had to share with the...
Last post by foxgrove - October 11, 2023, 07:38:05 AM
 :lmao: I have done the snoozing pooper a few times myself. So glad Aaron got himself ready and left on time. That's pretty awesome! Hope you get some refreshing sleep one of these days.  :bighug:
#37
OPEN TOPIC / Just had to share with the bro...
Last post by Robby - October 10, 2023, 06:19:44 PM
So right after Dawn left for work this morning at 6:30am, I went to the bathroom. I suddenly realized I was sleepy, so I looked at my phone to see what time it was, it was exactly 9:28am. I panicked, because I was supposed to get Aaron up and on the school van. I got to his room and looked in, he was not there. So my autistic son got himself up, and dressed and on the bus by himself. I am so proud of him. Me however, I am completely embarrassed that I fell asleep on the toilet. But if you have fibro, you understand why.

I thought all of you deserved a good laugh at my expense.
#38
OPEN TOPIC / Re: Issues with the forum
Last post by foxgrove - October 07, 2023, 08:35:00 AM
I hear you Hollywood. Robby is working on something with Discord to see if we can keep the group together while we figure out the issues with MWF. Hang in there, brother. We ain't leaving you behind.  :bighug:
#39
OPEN TOPIC / Re: Issues with the forum
Last post by Hollywood - October 05, 2023, 03:02:25 PM
Fox I appreciate all the hard work you put in to this forum.

But this new forum with no notices, no idea what's new or not.

Just makes me more confused than i already am. Sorry.

#40
General Discussion / Re: Here we go again looking f...
Last post by foxgrove - September 30, 2023, 03:11:15 PM
Dude... prayers answered! So glad you've gotten some pain relief. :bighug:

As to the drug stuff... dude, I so hear you. The limitations that go so far beyond taking care of people and into the realm of taking us hostage... there is so much wrong with our legal systems to give them that kind of power.

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